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TIMELINE OF THERAPY DEVELOPMENT FOR HEMOPHILIA

  • BEFORE 1938

    AVERAGE LIFE EXPECTANCY: 11 YEARS OLD

    TREATMENTS AVAILABLE: NONE

  • BEFORE 1968

    AVERAGE LIFE EXPECTANCY: 20 YEARS OLD

    TREATMENTS AVAILABLE: PLASMA OR WHOLE BLOOD TRANSFUSIONS

  • 1968

    AVERAGE LIFE EXPECTANCY: LESS THAN 40 YEARS OLD

    TREATMENTS AVAILABLE: CRYOPRECIPITATE

  • 1983

    AVERAGE LIFE EXPECTANCY: 40 YEARS OLD

    TREATMENTS AVAILABLE: FREEZE DRIED CLOTTING FACTORS **IMPACT OF AIDS/HIV ON BLOOD SUPPLY

  • 1988

    AVERAGE LIFE EXPECTANCY: **IMPACT OF AIDS/HIV ON BLOOD SUPPLY

    TREATMENTS AVAILABLE: FREEZE DRIED CLOTTING FACTORS

  • 1999

    AVERAGE LIFE EXPECTANCY: NORMAL LIFESPAN

    TREATMENTS AVAILABLE: GENETICALLY ENGINEERED CLOTTING FACTORS (RECOMBINATE)

  • EARLY 2000S

    AVERAGE LIFE EXPECTANCY: NORMAL LIFESPAN

    TREATMENTS AVAILABLE: NEW NOVEL THERAPY AVAILABLE (EXTENDED HALFLIFE)

  • 2010S

    AVERAGE LIFE EXPECTANCY: NORMAL LIFESPAN

    TREATMENTS AVAILABLE: SUBCUTANEOUS TREATMENTS

    GENE THERAPY CLINICAL TRIALS

  • TODAY

    FDA APPROVES GENE THERAPY FOR HEMOPHILIA A & B

    ADDITIONAL CLINICAL TRIALS CONTINUE FOR BOTH HEMOPHILIA A & B

washington days 2026

National Bleeding Disorders Foundation will be hosting its annual Washington Days March 4-6, 2026. Have your voice heard, as we work to ensure access to care for everyone with bleeding disorders. Lone Star Bleeding Disorders Foundation will be selecting a group of advocates to attend (flight and hotel will be covered). 

Application deadline closed.

Application does not guarantee attendance, we work to have as many areas of our Foundation represented as we can. If you are not selected, you may also register on your own through NBDF. For more information, visit NBDF's Washington Day's website  https://www.bleeding.org/events/washington-days-2025